This anchor hope symbol from the 2nd or 3rd century is in the Catacomb Domatilla in Rome, which I visited on my pilgrimage there in 2004 |
In April 2016
my wife, Candy, was diagnosed with Alzheimer’s disease. Our journey is
reshaping our understanding and experience of hope. We have some friends who
have told us they are praying God will heal her, a few with categorically
assertive assurance that she will be healed. I suppose at one level I do
believe God could do that, though that would seem to fly in the face of both
medical reality and our previous experience and theological understanding of
how God works. The therapy and medications she gets do seem to be slowing
progression, though that is very difficult to measure. She is diligent about
keeping her brain agile with puzzles, and participating in the Mind Effects
program at the Lutheran Home four hours every Thursday. We play Scrabble four
to five times a week, and she wins about three-quarters of the time with scores
near or over 300. We get wonderful support from our son and his family with
whom we share a duplex, and from Spirit of Peace Lutheran Church and Milwaukee
Mennonite Church, and some of the connections through the Alzheimer’s
Association.
Both the physician
who diagnosed her when we lived in Dallas and the one who cares for her here in
Milwaukee have encouraged us with a hope that at her age at onset and the pace
of decline, she could be fairly functional into her eighties, but nothing can
predict a sudden and even precipitously rapid decline. Her father is 91 still
living in his own home in Minnesota and has a good but not round-the-clock
caregiver as he copes with his own aging challenges. Just recently his
long-time dentist moved his wife into residential memory care. This seemed to
bring to Candy’s Dad’s the awareness of what we have known and lived with since
2016. When he told me on the phone about his dentist’s wife, he said to me, “I
hate to give you bad news, but Candy is not going to get better.”
While we can’t
predict the pace of our journey, we are acutely aware of the inexorable path on
which Alzheimer’s is taking us. So if we are not hoping she will get better,
what does it mean for us to make this journey with hope?
In forty plus
years of pastoral ministry, I have stood at many gravesides as the body of a
loved one is about to be lowered into the earth and said these classic words, “We commend to almighty God our sister/brother,
and we commit her/his body to the ground earth to earth, ashes to ashes, dust
to dust, in the sure and certain hope of the resurrection to eternal life.”
Behind those words and the hope they affirm is a mystery far beyond my ability
to grasp much less explain. Having attended (sometimes as a hearse or limousine
driver) many funerals, I too often cringe at the shallow attempts that seem to
me to trivialize both the pain of death and profundity of eternal life. I rebel
in anger at the way holding out some sort of “pie-in-the-sky-by-and-by”
pseudo-hope has been used as a way of pacifying victims of oppression or
discounting the reality of suffering. So far no one has said this to me. “She
is or will be so much better off when this life is over and she’s got her mind
and body back.” (Or the ubiquitous “She’s in a better place.”) But if they did
(even at the end of our journey), I might just snap back with anger.
From very early on, perhaps even late in
the first century, Christians have used the anchor as a symbol of hope, taking
a cue from Hebrews 6:19. “We have this hope, a sure and steadfast anchor
of the soul.” The small ships of ancient times needed a way to weather sudden
violent storms. The anchor was used in open water, lowered from the bow of the
ship to keep the prow pointing directly into the wind of the storm. That way
the ship could ride up and down with the waves without rolling and capsizing. When
the anchor was doing its job, it was unseen, deep below the water’s surface,
which fits with Romans 8:24. “Now hope that is seen is not hope. For who hopes
for what is seen?”
The security of
the hope anchor keeps us facing directly into the storm. This is not a hope for
a happy ending but a hope for authentic joy along the journey. Candy and I recognize,
sometime with humor and sometimes with grief, the increasing gaps in her
memory. We have relinquished efforts to save up new memories for the future.
Rather, we find hope in the sometimes sober joys of the present. Perhaps
enforced in a way we wouldn’t have wished for, this journey is instilling in us
the hope of living in the sacrament of the present moment, as I have often
taught and recommended Jean-Pierre de Caussade’s little book. God meets us in those
present joys, and in the laughs and tears of acknowledged holes in her memory.
We savor them as they occur, much as enjoying a delicious meal is superior to remembering
or anticipating one. And as God meets us, though unseen, we know we are not
alone on this journey.
I have long resonated with Thomas Merton’s
prayer from Thoughts in Solitude. “I
will trust you always though I may seem to be lost and in the shadow of death. I
will not fear, for you are ever with me, and you will never leave me to face my
perils alone.” Yes, we are facing both known and unknown perils on a trackless
journey often in the shadow of death, but our hope is that we are not alone. It
is not as though God is admonishing us, “Hang in there. A glorious reward
awaits.” No, with the anchor of hope unseen, keeping us pointed straight into
the storm, we are not alone. God is on the journey, in the perils, with us.
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